Respite is the intervention with the most evidence
Across the caregiving literature, the single most effective lever is scheduled, reliable respite — not one-off help, but a recurring block someone else owns. Caregivers consistently under-use it, and the reported reason is almost always the guilt item on this scale.
Anticipatory grief is real grief
Caring for someone with dementia or a degenerative illness means grieving a person who is still present. It is one of the least-acknowledged parts of the load and it responds to the same support as ordinary bereavement.
FAQ
Is this the Caregiver Strain Index?
No — the CSI is a specific validated instrument. This tool covers similar domains for self-reflection and is not a clinical assessment.
Where do I find respite help?
In the US, start with your local Area Agency on Aging (eldercare.acl.gov, 1-800-677-1116). Most regions have subsidised respite programmes that families do not know exist.
Is it normal to resent the person I care for?
Yes, and it is close to universal at high strain. Resentment tracks the load, not your feelings about the person.
How this calculator is built
Independently maintained
Written by Sam Doshi and the RevenueLab editorial team. We don't sell the data feeds this tool is built on.
Sourced from primary data
Benchmarks come from public AdSense / Stripe / IRS disclosures and reader-submitted data — never third-party "$X per view" claims. Full methodology.
Last editorial review
Reviewed on a rolling quarterly cycle. Dated reviews are published on the methodology record for each calculator.
Editorial standards
See our editorial policy and disclaimer. Results are estimates, not advice.